Kenes Associations Worldwide is pleased to announce a new client LUPUS EUROPE for which association management services will be provided starting as per 1st July 2013.
LUPUS EUROPE, a charity organisation, is an umbrella association of currently 25 national lupus self-help organisations from 23 member countries throughout Europe. LUPUS EUROPE promotes lupus at conventions and meetings throughout Europe and through its annual International magazine "Caring & Sharing" and members newsletters NewsFlashes .
Kenes Associations Worldwide will for LUPUS EUROPE provide secretarial services with a strong focus on the annual event and is aiming to expand the level of support and through campaigning raise the awareness for the disease.
The Chair of LUPUS EUROPE (Kirsten Lerstrom) was recently in the Amsterdam office to sign the contract:
What is LUPUS? - HARD TO SAY, HARDER TO LIVE WITH ...
So few have heard of it, yet worldwide it's seen as more common than leukaemia muscular dystrophy and multiple sclerosis.
Systemic Lupus erythematosus (SLE, Lupus) is an autoimmune disease which can affect all parts and organs of the body giving rise to many varying symptoms.
Lupus is a condition whereby the body's defence mechanism goes into overdrive and starts to attack itself. The symptoms are many and varied, and the illness often seems to mimic other diseases. This gives rise to difficulty in diagnosis and the condition can be overlooked, sometimes for years, unless the General Practioner or consultant is alert to the possibility of lupus.
The majority of Lupus patients are female of childbearing age, but men and even young children can be affected by Lupus.
It is estimated that 1 in 750 women suffer from Lupus in Europe with the ratio of women to men being 9:1. Lupus is a worldwide disease more common in some races than others.The incidence in white women is 1 in 1000 compared with that in black women of 1 in 250 and Asian races also have a higher tendency to Lupus.
There is no cure ...
People diagnosed normally remain in medical care, with continuing medication. Many symptoms have less impact as a result, but side effects often occur .Lupus adversely influences the lives of sufferers, the family and their friends.